yeah, I'm behind

Just realized I never updated you guys about the last mayo clinic/doctor visit!!

I guess there really isn't too much to say about it. He was wonderful, nice and answered all my questions, as usual. I've seen him before. I started two new medications. And I will now get IV therapy up to two times a week! Which is exciting!

I asked him for that last treatment... it works very well for dysautonomia but they would rather give you meds than have you come to a clinic for IVs. But fortunately I didn't have to beg him, he gave me what I wanted! Mom says I should have asked him for a handicapped sticker for my car since he was in a giving mood :-P

Getting things set up in Eau Claire has been quite a journey. Love the school but the doctors seem to have absolutely zero ideas about what to do with me! Student health services said they won't do the therapy for me because heart problems are too scary :) So I tried to set it up at the "chronic care" clinic (SHS called them to help me set it up) and they won't do it unless I have a local doctor.

ughhhhhhhhhhhhhh I have SO MANY DOCTORS! I told the lady I didn't want anymore and I already see my primary Dr. at least once a month, but apparently it must be done this way.

Whatevs. As long as I can eventually set it up!

Every person I've talked to so far in EC has said they don't know what POTS or dysautonomia is. I think if they knew it would be easier for them to just let me get my stinkin IVS... I promise I won't have a heart attack!

Got my disability papers all checked out so I can miss classes! :-D I'm taking 12 credits. So either I'll be barely alive (like last year) or I'll be bored out of my mind!! But no class on fridays! woopwoop!

Nothing else going on doctor-wise for a long, long time! (well, important things anyways). Six months for mayo and a couple months for cardio and every few weeks for TB testing which is no big deal... it's the end of a crazy, crazy road!

So you can pray that I don't tweak out at college... emotionally or physically... that I don't have weird unconscious/ bizarro spells, chest pain, fainting spells, or any other really scary issues. I have my own room with a door now, so at least I won't be in the ER as much :oD

I think that's it!

I'll update you guys if exciting/ horrifying things happen.

Thanks for tracking with me through all this, you've all meant so much to me.

Love,
Eli